There are many chronic illness misconceptions, but these are 13
that I thought were important to address:
1: "You're too young to have that!"
Chronic illness has no discrimination
against age, gender, ethnicity, etc. The sad reality is that anyone can have a
chronic illness - including children and teenagers.
2: "But you don't look
sick."
The fact is that 96 percent of chronic
illnesses are invisible to the eye, but on the inside there's a whole different
story. Just because one may look "fine" doesn't mean they are. Just
because you can’t see it doesn’t mean we can’t feel it.
3: "All you need to do is
exercise more!"
While exercising is essential for good
health, a lot of people with chronic illness try to be able to exercise and be
normal, but it's hard when you have limited energy and constant pain. Also,
certain exercising could cause the chronic illness to get worse. It's
ultimately the patient and doctor's decision as to whether or not it would be
beneficial.
4: "Just take wheat or *fill in
the blank food* out of your diet and you'll be cured!"
Yes, eating a healthy diet is extremely
important, but it can't cure a chronic illness. Fixing your diet won't fix your
genetics. While it would be good for you, a certain food or plant doesn't have
the magical cure.
5: "Oh yeah, I had a pulled
muscle and UTI once so I can totally relate."
While this may seem like lending out a
sweet hand of understanding, it can frustrate some people with chronic illness
quite a bit. While dealing with any type of pain is bad, and I feel like trying
to minimize anyone's pain is wrong and unacceptable, there's a large difference
between a strained muscle and your body attacking itself and causing chronic
pain.
Wheelchair doesn't automatically mean paralyzed
just like hospital doesn't automatically mean cancer. You can be in a
wheelchair and still be able to walk and move your legs, you just may not be
able to walk well or it may be painful.
7: "I wish I could lie around
all day like you do!"
Netflix and internet can only entertain
you for so long. It's boring and most chronically ill teenagers would rather be
hanging out with friends and outside rather than resting all day. Having a
chronic illness isn't a luxury.
8: "Look
she's walking around, she must be better!"
Just because someone with a chronic illness is able to do more and run one day doesn't mean they won’t suffer from it that night and still be sick. Yay for the good days, but just because one day is better doesn’t mean they’re cured and without pain the next day.
Just because someone with a chronic illness is able to do more and run one day doesn't mean they won’t suffer from it that night and still be sick. Yay for the good days, but just because one day is better doesn’t mean they’re cured and without pain the next day.
9: "Oh,
they're just dumb teens, they don't understand their illness."
NO, NO, NOOO. Incorrect. False. Blasphemy!
Teenagers with chronic illness know about their illnesses and what goes on in
their bodies better than anybody. They know exactly what they are going
through, and treating them like they don't is demeaning and ignorant. No. This
is not okay.
10: "Oh,
she just takes her mediation for an emotional fix."
I have been told this so many times. While
some may take their medication to get high, the majority take it to treat a
legitimate and painful diagnosis. Saying this can be extremely unhelpful and
offensive. Plus for me I doubt I can get high off blood thinners and anti-seizure
medications. Do your homework before accusing anyone of this.
11: "All you have to do is ask
for medication then you're fine."
Again: incorrect, false, blasphemy! For
somebody with chronic illness, medication doesn't just "fix" you. A
lot of times the medications don't even work or the side effects are worse than
the disease itself! Medications
for a chronic illness usually just touch the surface to manage symptoms.
for a chronic illness usually just touch the surface to manage symptoms.
12: "You're
just lazy!"
When you have a chronic illness your body
is literally attacking itself. Attacking your blood and organs is tiring
enough, but then add on 5-6+ medications that all have a major side effect for
fatigue. Wouldn't you want to take a nap too? It's not laziness when you want
to get out and be active, but you have zero energy whatsoever.
13: "She
cancelled plans on me, she obviously doesn't want to hang out."
With chronic illness you have very limited
energy and flares can happen at any time. It's not because we don't want to
hang out with you, trust me we would much rather hang out with you then be in
bed, we just aren't able.
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